*Cette session sera interpréter en direct de l’anglais vers le français.

This presentation will provide a synopsis of patient-oriented research as framed by CIHR’s Strategies for Patient-Oriented Research or SPOR program, to include its benefits and challenges. Trainees will consider how patient-partners may engage in a representative example of a child health research project.  An overview of a SPOR Network called CHILD-BRIGHT will be provided, with a focus on our efforts to support authentic engagement of youth with disabilities and their parents in research projects and network programs.

  • Annette Majnemer.
    Dr. Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She was the inaugural Vice-Dean Education for the Faculty of Medicine and Health Sciences, McGill University, and Professor in the School of Physical & Occupational Therapy. Dr. Majnemer is a Senior Scientist at the Research Institute - McGill University Health Centre, and a member of Montreal’s Centre for Interdisciplinary Research in Rehabilitation. Her research focuses on early identification strategies for children at high-risk for disability and factors that influence outcomes. She leads CHILD-BRIGHT, a CIHR SPOR network (research, training, KT, citizen engagement) focused on children with brain-based disabilities.
  • Carrie Costello
    Carrie Costello is the Implementation Support Coordinator for The Center for Implementation. She is a graduate of the University of Victoria BFA program and came into research after her middle child was diagnosed early in life with a profound intellectual disability. She has been a parent partner in research on over 15 projects and is the primary co-investigator on two of these research studies. She specializes in facilitating conversations with children and youth. Carrie worked in patient engagement at the Children's Hospital Research Institute of Manitoba and is still involved as the parent liaison at the CHILD-BRIGHT research network. She won the Frank Gavin Patient Engagement Leadership Award and the Made With Patients Rising Star award for her work. Carrie is also an award-winning playwright for young audiences and an avid puppeteer.

Event Details

  • Date September 27, 2023
  • Start Time 12:00
  • End Time 13:00
  • Location Online Event
All times are EST/EDT (Toronto).